Karen DeMuth’s seven-year-old son Dante was born with Down syndrome and with out an esophagus.
Starting when he was 9 months outdated, he spent a yr in intensive care, present process 26 surgical procedures and spending greater than 200 days on a ventilator.
Consequently, he has listening to and visible deficits and is non-verbal.
A few years in the past, Karen DeMuth employed Dinah Frilling of Kindermusik, a program designed to introduce music to younger kids, to work with Dante. His response was fast and really enthusiastic.
“He would begin taking part in devices,” DeMuth mentioned. “He would hand them out to individuals. He would dance across the room. He was engaged and cognitively excited.”
After 10 weeks of two periods a day, DeMuth approached Elizabeth Kavanaugh, principal at Neptune Seashore Elementary College, which has a wing with seven school rooms for youngsters with average to extreme medical, neurological and cognitive particular wants. DeMuth proposed bringing in Frilling to work with these kids. Frilling and one other musician have been spending Mondays working in these seven school rooms for the final yr and a half.
To pay for that, DeMuth held a collection of fundraisers and secured $18,000.
The musicians have introduced elevated studying and far pleasure to the special-needs college students, DeMuth mentioned. However they aren’t educated and authorized as music therapists.
So this spring, DeMuth used some funds she had raised to rent Steve Amburn for a pilot program. Amburn is a licensed music therapist who works at Nemours Youngsters’s Specialty Care and works with personal purchasers by means of his enterprise, First Coast Music Remedy.
Amburn has been coming to Neptune Seashore Elementary on Wednesdays and Fridays, spending 30 minutes working with two lessons.
“Music is so useful to them,” mentioned Mary Lou Dorsey, lead trainer for Neptune Seashore Elementary’s Distinctive Scholar Training program. “We’ve seen such a distinction within the kids since we began this program.”
“Music remedy is goal-oriented,” Amburn mentioned. “I do a music remedy evaluation and have a look at what these youngsters need assistance with. Impulse management is a giant factor. Chances are you’ll need to cross the road however you’ve acquired to attend. The aim is to take the teachings we be taught in music remedy and use these abilities in on a regular basis life.”
To assist youngsters be taught impulse management, Amburn palms out devices however makes the kids wait till he provides permission to make use of the instrument.
“We work on cognition and communications abilities,” he mentioned.
Now DeMuth want to broaden Amburn’s involvement by having him work for an hour with seven totally different lessons twice per week.
To afford that and the persevering with participation of Frilling and the opposite musician, DeMuth believes she wants to lift $35,000.
That effort will start Saturday with a “Connecting By means of Music” live performance and fundraiser at Neptune Seashore Elementary, 1515 Florida Blvd.
It begins at 5:30 p.m. with a efficiency by Frilling. Different performances will observe, there will probably be a dressing up contest, a silent public sale, a raffle and loads of meals obtainable. It is going to finish at eight p.m.
“We won’t increase $35,000 that night time,” DeMuth mentioned. “However we are going to get the phrase out. Lots of people don’t know there’s a particular wants wing at Neptune Seashore Elementary College.”
Charlie Patton: (904) 359-4413